Archive for October, 2012

Our journey with Brandon

Wednesday, October 3rd, 2012

There are a few questions that we’ve been asked over and over since June and it seemed like a good idea to document what’s been going on.

What prompted us to take Brandon in for allergy testing?

Two things came together at about the same time.  We had received an email from Brandon’s teacher that he was falling asleep in class.  We didn’t think anything of it until a couple of weeks later when he came home and said he wasn’t allowed to go to recess the rest of the year (this was May).  He was required to go to the health room to nap instead.  That’s when we found out there was a recurring, systemic problem.  I called a conference with his teacher and found out he was alternately sleeping or disruptive and hyper.  Around the same time, we had gone out to a restaurant and he had consumed a little bit of cantaloupe which made him sick immediately.  With my own history of food allergies, little red alarms were going off in my head.

Upon testing, Brandon reacted to every food tested except egg.  Wheat, soy, milk, rice, potato, tomato, sugar, chocolate, yeast, and one more (I’m always missing one when I list them).  We eliminated all of these foods from his diet and noticed improvement in his general demeanor, control, and energy level very quickly.  As I posted earlier, he’s down to just four of these foods that truly cause a problem.

Okay, so he has food allergies.  So what does this have to do with homeschooling?  Seems like a leap.

I agree, it was a decision prompted by an emotional reaction.  I had a conversation with the school principal and nurse that made clear that they believed that Brandon was being deliberately disobedient and that our choice of pursuing food testing was ridiculous.  The principal was utterly unhelpful, immovable, and did absolutely nothing to help us get through the last few weeks of the school year.

Though a bit impulsive, I still believe it has been the best move for him this year.  Brandon spent last school year being yelled at.  He was in trouble in music class.  He was in trouble in his regular classroom.  He was in trouble in the health room because he couldn’t sleep on command.  While Brandon projects himself to be a self-confident, social, extrovert, we have learned that he is actually quite insecure, anxiety ridden, sensitive, and folds into himself when stressed.  Our goal is to spend this year (and probably next) finding ways to build up his confidence again.

What about socialization?

Oh my, the number 1 question posed to homeschoolers everywhere.  I could cite so many books, links, resources that answer this question.  In short, in the real world we socialize with people of all ages.  So do homeschoolers every day.  There’s nothing that says kids need to be in a group of kids the same age in order to turn out just fine.

That said, yes, Brandon is still playing soccer with the same group of kids he’s played with for years.  He is attending school at Edmonds Heights K-12, a parent-participation alternative school formerly known as the Homeschool Resource Center two hours a week.  He participates in Sunday School and church activities.  He’s not learning in isolation.

What does homeschooling look like for him?  What’s he learning?

He’s taking a game-programming class called RPGMaker.  He’s taking Class Piano.  At home, we’re working through a lab-based Chemistry curriculum.  For literature, he’s reading The Hobbit and is looking forward to seeing the movie when it comes out.  The rest of the year, we have King Arthur and Robin Hood on the agenda.  For Social Studies, we’re working through Story of the World Book 2 (The Middle Ages), which includes a lot of fun little projects that bring history to life.  He’s also studying the election process, of course.  He’s working through a standard math text.  He’s looking forward to participating in Nanowrimo again this November for creative writing.  He’s working on a super-secret video project that combines his love of video games with learning new technology.  We’re looking forward to attending a few Seattle Children’s Theater productions (at inexpensive homeschooler rates).

Because we are enrolled through Edmonds Heights, he is still considered a public school student and as such, we are required to report his monthly progress to the school, to spend at least an hour a week with a certificated teacher, and to meet with an advisor three times a year.  On the flip side, we have access to a great library and many encouraging people, and we are held accountable, which is helpful.

How is it working to homeschool and work at the same time?

It’s truly a challenge.  Most days I don’t feel like I’m balancing everything very well.  I know that we are doing this for the right reasons and God has control of the situation.  I’m at the office very little right now, and Brandon often comes with me.  We’re learning how and when he learns best (which is a day by day struggle depending on what he ate the day before).  I’m praying that by the time tax season comes around again we’ll have this figured out a bit more, but realistically I think it’s just going to be a challenging time.  I am, most days, truly enjoying getting to know Brandon better and exploring and experiencing learning in different ways.

What is the plan for next year?  What about middle school?

We expect to homeschool through next year (6th grade) and he’ll move into Meadowdale Middle School with all of his friends in 7th grade.  Only God knows if that’s truly how it will work out.

Any other questions I’ve missed?

I’m happy to try to answer them.

Food allergies, revisited

Tuesday, October 2nd, 2012

Yep, I know… it’s been two years since my last post.  I’m not sure how that’s possible, but I do know that facebook has taken over most things that I would have blogged about.  At the same time, I’m sad that I haven’t blogged many of the events of the last few years.

This will not be one of those massive “catching up” posts, though.  For today, I just want to throw out there the cheat sheet we’re putting together to go with Brandon when he goes to a friend’s house.  His food allergies have been much more pronounced and serious than anything I’ve dealt with before, and it’s been a learning experience.  I hope to write out our journey so far soon.

In the meantime, here it is:

Brandon is allergic to five foods: Cantaloupe, Sugar, Yeast, Soy, and Tomato

Cantaloupe will make him sick immediately.  Best not to give him fruit that has been mixed with cantaloupe.

Sugar causes swings from hyperactivity to lethargy and crankiness, but no severe reaction.
Limit: Anything with sugar, brown sugar, cane juice

Yeast, when consumed in quantity, causes Brandon to be virtually unwakable the next morning.
Avoid: Breads, cakes, pita chips

Soy causes extreme stomach pain, headache, nausea, slurred speech, and has caused Brandon to lose mobility. His reactions to soy do not begin immediately and can take 12+ hours to manifest. If you see him eating something with soy, please stop him.
Please do check labels, many chips and most tortillas use soybean oil.
NO Chinese food, tofu, foods cooked in soybean oil, edamame, foods with “soy protein”
Ok: “Soy lecithin”

Tomato caused a very strong reaction in the clinical setting. He has not had tomato since, so we do not know how he would react. An epi-pen was issued in case of anaphylactic shock, where the airway closes up. If you do not know how to use an epi-pen, please ask and he would be happy to show it to you and explain how to use it. In an emergency, please don’t hesitate to use it and call 911.
NO tomato sauce, pizza or pasta with red sauce or tomatoes, barbeque sauce, ketchup

So what DOES he eat?
Meats, salad, vegetables, and fruits are good. He likes sugar-free jello. Popcorn is probably fine. 100% fruit juice or water are good. We do try to keep some sugar-free snack foods in his emergency kit (which contains his inhaler and his epi-pen).

It’s a journey, and we’re still discovering ways to keep Brandon healthy and feeling well.  When he’s well, Brandon is a joy to be around.  He is helpful and kind, funny and thoughtful.  When he is not well, he can be inattentive, angry, very easily frustrated, seemingly deliberately disobedient, hyper or lethargic.  We continue to pray for wisdom and patience on this journey.